National Organization for Rare Disorders: Delaware Enacts Law to Address Needs of Rare Disease Patients and Families
July 27, 2023
July 27, 2023
DOVER, Delaware, July 27 -- The National Organization for Rare Disorders issued the following news release on July 26, 2023:
Today, patients and families in Delaware's rare disease community celebrated the passage of Senate Bill 55 (SB 55) with Amendment SA 1, which officially establishes a Rare Disease Advisory Council (RDAC) in their state.
The Rare Disease Advisory Council will be made up of a diverse group of stakeholders including patients, caregivers, researchers, . . .
Today, patients and families in Delaware's rare disease community celebrated the passage of Senate Bill 55 (SB 55) with Amendment SA 1, which officially establishes a Rare Disease Advisory Council (RDAC) in their state.
The Rare Disease Advisory Council will be made up of a diverse group of stakeholders including patients, caregivers, researchers, . . .